Jerome Waldie, who died a couple of weeks ago at the age of 84, wrote a column for the East County Times just before his death that is well worth your time. Here's an excerpt:
One of my favorite doctors (I have seen 14 physicians during this ordeal) discussing his diagnosis sought to comfort me by revealing that in his experience every patient he had seen who had Giant Cell Arteriosis was an "extremely nice person." I was quite moved by his sincerity and his compliment. Though at a later conference, being the smart ass that I am, I asked him if I became a SOB would it be easier to treat my disease?